It was exactly a year ago, today that I was in Pfizer's headquarters in Tadworth with the big wigs of the pharmaceutical industry, my young student friend, Clara whom I mentor, and who also lives with sickle cell and John James, CEO Sickle cell Society. We were educating and representing the sickle community in the recognition of World Rare Disease Day. There are over 6,000 rare diseases in the world and quite a number of rare diseases are still formally or clinically undiagnosed. Each year the World Health Organisation and other global health agencies celebrate rare disease day to raise awareness of some of these rare conditions. Sickle cell is still classified as a rare disease in the U.K.